Original Post :
"Ever since I was in sixth grade (i am now 20), I got "ophthalmologic migraine’s". I’d see weird lights, like tv snow, and then lose my vision for about an hour at most, then got a HORRIBLE migraine. But recently I had one, and it hasnt went away. I feel like im stuck in the first 5 minutes of that kind of headache, where I can see, but not see everything. Like a blind spot. What should I do? my eyes feel strained, and I dont have a headache. Please help. It feels like something is missing out of the picture.
Also, I have a pituitary tumor, but its a microadenoma. The surgeon said it was not causing these headaches. That was a year ago.
Please help "
So i went to the Ophthalmologist and they ran every test possible for my eyes. The doctor told me my eyes are perfect. I just have an astigmatism. He took pictures of my retina and said that if there was pressure on my optic nerve from the tumor, hed see something.
He said it could be pressure in my brain, or lack of blood flow. Like "falling asleep on an arm."
What could this possibly mean? I went for an MRI/MRA today but it got canceled until next week.
What could any of this mean?
Additional information:
I have an under active thyroid (not from the tumor, the tumor doesn’t affect any hormones)
Aortic Stenosis, Aortic regurgitation, and high blood pressure, Asthma, Ophthalmic migraines and Mental issues as well.
anyone know what to do?
twildman22
July 19th, 2010
And you are 20? If the doc said your eyes were perfect then maybe it is something mental going on. Sorry. On the other hand tests dont always show everything but it looks like they pretty much did the tests that would show something if it were there.
Jen S
July 19th, 2010
Ditch the surgeon.
Are you seeing an endocrinologist? What kind of tumor is it? Pituitary tumors absolutely can and DO contribute to headaches, which only shows that he is not a pituitary surgeon.
You need to seek out and find a neuro-endocrinologist and get treated for the pituitary tumor. It may only be monitoring but I beg to differ – the thyroid IS related. I can tell you that the pituitary controls the thyroid, and several other hormones such as cortisol lower cortisol and just having a pituitary tumor lowers TSH. So whoever said that is… well, it is not fit to print. Cortisol can also raise blood pressure, cause GERD and have the mental issues – do you see a pattern here?
You do not have air pressure, but high CSF pressure. Please go see a neuro-endo ASAP. Also, go find a neuro-opthomologist if the one that saw you was not one – you may need visual fields and all.
Get testing – get copies and read everything, keep a copy for yourself.